Wednesday, March 20, 2013

Mirena IUD is Poisonous / Hashimoto / Silicone Toxicity

It's been awhile since I've posted anything, but I've been busy trying to heal and get my health back on track.  

Today, I sit in a hotel room at the Courtyard Mayo Clinic in Scottsdale, Arizona.  I made an appointment with the Rheumatology Dept last November and had my visit this week.

In a nutshell, the Rheumatologist does not think I have an auto-immune disease, nor do I present with any signs of RA (Sero Negative and my tests are still negative for any indication that I have an auto immune disease or RA).  She said I do not present with any signs of RA on examination. 

She did, however, do a LOAD of tests.  The main test that came back positive (through the roof) wasa the TPO --- which tests for Hashimoto Disease.  My TPO result was 160.8, normal is a number less than 9.0.  TPO = Thyroperoxidose (TPO) Anti-Bodies Serum test.  It differentiates thyroid auto immune disorders from non-auto immune disorders such as goiter or hypothyroidism.  Hashimoto Thyroiditis is when the immune system attacks the thyroid.  I had a severe attack.  My TSH (thyroid function) is normal and "survived the attack."

Bottom line, she thinks I should wean off the methotrexate over time.  If the methotrexate is responsible for "putting this sero negative RA into remission" then weaning off it would trigger a flare up.  She does not think that's the case, but the only thing I can do is prove it by weaning off of it. 

She said it doesn't mean I won't present with auto immune disease in the future, as no one can predict the future, and it doesn't mean that i won't present with RA symptoms after I wean off, but it seems likely that I won't, my interpretation.

Furthermore,  I retook the Silicone Serum test and it received a call from my doctor on Tuesday. The silicone test came back 0.00.  Yes. ZERO.  The day i took my blood for the first test, it was .19, now it is zero.  If you remember, i removed the IUD the same day i had my blood drawn.

The Mayo Clinic doctor said, when you got the IUD, you got sick.  When you removed it, you felt better and continue to get better.  She said, so, continue doing what you are doing with your diet, etc.  She said the only toxic thing going into my body right now is the methotrexate.  I also shared with her my doctor in NY wanted me to start taking a biologic, enbrel or humira, she said DO NOT TAKE IT, you don't need it.

She said  I should follow up with my OB/GYN re my period not showing up since I had the IUD inserted.  I think i'll be on a diligent search for new doctors who think and treat patients with an open mind, consider holistic medicine, and alternative medicine, along with science.

This is what I think happened.

I had already been feeling tired, my diet had been poor, i stopped exercising.  I stopped YAZ and had the IUD inserted.  My body did start attacking itself, just as I felt it was, and I believe it started attacking my thyroid - now that I have the Hashimoto Diagnosis.  At the same time, the MIRENA IUD, which is made from silicone started leaking silicone in my body.  So, at the same time, i started to present with silicon toxicity symptoms.  I copy & paste below the symptoms for Hashimoto and Silicone Toxicity. 

I did ask the Dr., why do i still have joint pain.  She thinks it's residual from whatever happened... Time will tell, it always does.

I am currently waiting for the formal report, which will be posted on my Mayo Clinic web page.  How great to see a doctor who is open minded, intelligent, and thorough.  The tests she took were NOT TAKEN by my doctors. Also, how great that MAYO posts everything onto your account in real time!  They hide nothing, including their clinical notes and reports!   In fact, my NY doctors wouldn't even entertain the IUD was a factor.  I believe it is, but, again, time will tell as I wean off methotrexate.  You can't just stop it, so I'll do wha tthe doctor recommends.

Next steps, get my final report from Mayo, including test resuts, and meet with my doctors face to face in NYC to discuss these results and fnidings, and recommendations.  Mayo doc said if i can't get in synch with our mind sets -- FIND A NEW DOCTOR! :) 

Thank you, Mayo clinic and Rheumatology.  I can't wait to see how I progress.  In the meantime, I have also started reading Eat to Live by Dr. Joel Furhman and am going to make an appointment with his office. 

I will write more as I get more information.  WHATEVER YOU DO, DO NOT GET THE MIRENA IUD. 

HASHIMOTO SYMPTOMS
  • Fatigue and sluggishness
  • Increased sensitivity to cold
  • Constipation
  • Pale, dry skin
  • A puffy face
  • Hoarse voice
  • An elevated blood cholesterol level
  • Unexplained weight gain — occurring infrequently and rarely exceeding 10 to 20 pounds, most of which is fluid
  • Muscle aches, tenderness and stiffness, especially in your shoulders and hips
  • Pain and stiffness in your joints and swelling in your knees or the small joints in your hands and feet
  • Muscle weakness, especially in your lower extremities
  • Excessive or prolonged menstrual bleeding (menorrhagia) - no sign of this, i have no period
  • Depression
  • Without treatment, signs and symptoms gradually become more severe and your thyroid gland may become enlarged (goiter). In addition, you may become more forgetful, your thought processes may slow or you may feel depressed.
    When to see a doctor
    See your doctor if you develop these signs and symptoms:
    • Tiredness for no apparent reason
    • Dry skin
    • Pale, puffy face
    • Constipation
    • Hoarse voice
     The Signs and Symptoms of Silicone Immune Toxicity Syndrome are as follows:
    • Multipe chemical sensitivities and sensitivities to perfume, smoke and other inhalants
    • Muscle inflammation
    • Joint pain
    • Fatigue
    • Weakness
    • Anxiety and depression
    • Hair loss
    • Memory loss
    • Foggy thinking
    • Night sweats
    • Tingling in the hands and feet
    • Heacaches
    • Abdominal pain
    • Chest pain
    • Other autoimmune disorders, including rheumatoid arthritis and Sjogren’s syndrome, scleroderma, fibromayalgia, and multiple sclerosis
    In silicone immune toxicity syndrome, the body produces antibodies against the complex that forms when silicon attaches to protein molecules in various organs, resulting in an autoimmune response.

    25 comments:

    1. Your blog is outstanding; the matter is something that not many people are talking intelligently about. I’m very happy that I stumbled across this in my search for something relating to this.

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    2. Good Blog sir... your blog is very helpful... I am happy to find this post very useful for me, as it contains lot of information. I always prefer to read the quality content and this thing I found in you post. Thanks for sharing.
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    3. This comment has been removed by the author.

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    4. I have just finished reading your blog from start to finish. I honestly don't know where to start. I have experienced almost exactly what you have been going through and have been frustrated beyond words with my doctors, particularly the Rheumatologists. I was diagnosed almost 4 years ago with Mixed Connective Tissue Disease (MCTD) based on positive ANA, swollen hands/fingers, and joint inflammation. MCTD shares common symptoms with RA, Lupus, Polymyositis and Scleroderma. I remember not being able to make a fist or tear open a packet of tea. I remember how swollen my knees got and barely being able to walk. I think the meds- prednisone and Imuran (immunosuppressant also known to be a carcingogen), among about a half dozen others, were the most difficult to cope with. Going up and down in dosage, physical pain/energy/weight/mood/appetite/skin changes... It's hard not to go on and on about this but I just wanted to pop in and tell you I've been there.

      One difference with my experience is that my disease onset came (I believe, it's hard to remember) roughly around the time that I went on Yaz, although I had been on and off birth control in prior years. Since then I was on and off depending on my relationship status and remembering/forgetting to take the pill. Then I got a Mirena about 2 years ago and some of my MCTD symptoms have been better but not all, and some have been worse. I decided it wasn't working for me but I tried to get my doctor to take it out for almost 2 years but she always convinced me to leave it in. I recently finally had the nerve to just tell her to pull the damn thing. It's been 2 months. My first period I got about 1-2 weeks after IUD removal and it was basically Armageddon period- bleeding through super plus tampons and diaper overnight pads in record time. A couple weeks later I got another semi-normal flow period, and then another and another all separated by less than a week. Basically, I've been bleeding for a month. I was wondering how your cycle has been since you had Mirena removed? How have you autoimmune symptoms been since removal and detoxing, etc.?

      I could probably write a novel describing my experience with the complexity of an autoimmune disease, the myriad of specialists they have you run around to, arguing with doctors, the uncertainty of it all, side effects, etc. etc. ETC.! Thank you for writing so clearly and descriptively about your experience. I feel less alone but it makes me mad that you or I or anyone have been through such frustrations with medicine.

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      1. I just came across your comment here and I feel like we are the same person. Make a fist? Tear open a tea bag? That's totally me. I don't even know if you'll get this because it's 3 years after you posted it but I'm wondering how you are feeling?

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    5. Hi! I also had an RA and was treated through therapy. I really don't know but it seems like most RA patients have gone through different treatments and have seen several doctors before finding the one that could give them the suitable treatment. As for me, I've consulted 3 different pcp, had various pain relievers and medications, and other laboratory procedures. My RA journey ended when I had stem cell therapy with Dr Purita, my orthopedic surgeon. Before, I thought that RA will be my forever burden and pain, but I was wrong. I am hoping that other RA patients will find solution to their conditions as well. I wish you all the best! :)

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    6. Thank you for sharing this information. Makes me feel like I'm not crazy. I just got my Mirena out today after having it for 5 years and with symptoms worsening every year until the last year I felt like I'm dying inside and have severe heart, joint and muscle problems.

      It also took 3 attempts to remove the IUD. I'm calling my doctor tomorrow to hopefully get them to do the blood test to confirm the silicone toxicity.

      I'm hoping I will start to feel better soon now that the evil Mirena is out of my body>

      Good Luck to you:-)

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    7. Holy crap I have every single symptom ! I'm having my iud removed on Friday. Is there some kind of cure for the poisoning ?

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    8. I too am thankful for your blog! Mirena was poison to me and i only had it 4.5 months. I am 34. Right before i had it removed i woke up one morning with severe left hip painand now even almost 3 months post removal i can still barely walk without severe pain. My ortho also says RA, but now after reading this i am wondering about the hashimoto symptom. So did you have other symptoms of the hashimoto disease, everything but the period? I started having throat issues where my throat feels tight even when swallowing spit. Doc says it its just a virus but strep and everything came back fine. I also have done most of my own diagnosing and Just ask my Doc to run certain blood test. It is frustrating. Thanks again!

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    9. Hi I'm I just don't know where to start. But I'm only 22 and I had the mareina puts in 1yr ago. I was having some medical problems that my GP tried to treat for over the period of that year. After bleeding for 6 mths after putting in the mareina. I saw my period once after. Then my symptoms started with an infection in my tube and I will also get severe cramping pains in my legs that my Dr tried to treat for the next six months. After all that he then decided to refer me back to my gynecologist which was a month ago. On that said day of my interview my right knee started to swell. I thought it was due to old injuries from sports but he noticed my pain and asked me what's wrong when I told him he said to take some pain killers and watch it over the weekend. When I left his office 1hr later I called him back crying in pain so he referred me to see a Dr on Monday. To put everything in a nut shell to date I'm my condition have worsen I'm still doing lab work to find out what s going on. But nw my gyn wants me to do the silicone toxicity test cz he thinks my symptoms are related. I hope you all get better soon and remember you're not alone. Love and may God bless you all.

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    10. Over a period of 5 years my world fell apart. I went from loving life, lots of energy, being very social, life of the party, happy go lucky positive, quick witted and intelligent friendly female to a hermit. Suicide and depression were constant, my beautiful hair was falling out, dull and breaking. I couldn't hold a conversation because I couldn't get words out (I likened it to mental dyslexia - words, sentences were in my head but when I tried to speak everything became jumbled and lost). Fatigue overwhelmed me. My eyes became sensitive to light and there seemed to be a film covering them making everything blurry. Memory loss. Anxiety. Lesions, horrible things that wouldn't heal and looked like I had picked at them when in fact I hadn't touched them. I felt dirty and ugly and embarrassed when someone saw them. For four years I wore nothing but long tops that covered my arms. I still have horrible scars but they will fade. AND I could carry the list on. Since the majority of my problems were not visual, it was very hard having to explain to friends, family, partner, doctors and welfare ( I couldn't work) that I was ill, that I did have all these "problems" and I wasn't a Hypochondriac. I've never felt so alone and scared. Maybe I was going crazy. My doctor made me feel like a drug addict...I have lesions, I'm depressed etc etc - I must be on drugs, even when bloods came back negative but also perfect. So I stopped going to the doctors and I started doing internet searches, tried natural remedies and sprayed for mites and cleaned for mold and looked to the skies for chem trails. This was my life for 5 years. Then one day I came across a comment about the Mirena and it's side effects to name one SILICONE POISONING. Two days later I removed it myself since my doctor refused to acknowledge that the Mirena might be responsible and didn't think taking it out would benefit me. 5 months later nearly all my symptoms, problems, have 90% disappeared. My lesions have 100% gone. I have detoxed with Chlorella and cilantro and taken detox baths to help removal of poisons......this time they are working because I removed what was making me ill. I still have a long way to go to get my life back on track . I've nearly lost my home and my mental well being took a smash in the face.

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      1. Wow... its like im reading my own story here. I am in Australia. I was working 10 hour days in construction with 2 hours travel added per day. I was a walking corpse for 8 months. Everything you mentioned plus restless legs every night in addition to the skin on my back burning of a night like i had incredibly severe sunburn. Endone wouldnt even put a dint in the pain i suffered every day. It took 2 months before some relief of symptoms and stopped thoughts of crashing my car to escape the pain. Could not find a single doctor who could help me, and had to demand my mirena be removed. :(
        Oddly my joints in my hands and feet sometimes flare with pain still, but nothing in comparison to what i first experienced

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    11. This is great news for you. I understand the frustration. I am still unraveling the puzzle of my health and i'm getting closer. It's forums like this where people can find support and start to heal. I"m happy you are feeling better. My main recommendation is to cut out gluten and go vegan for at least 12 weeks. See how you feel and how your body responds. Also find a great functional medicine doctor who practices holistic health and understands nutrition. I highly recommend starting with Eat to Live by Dr. Joel Fuhrman, and next The Food Revolution by John Robbins. Also, check out nutritionfacts.org, Dr. Greger has EXCELLENT information and compiles this from about 30,000 published articles in medical field each year. There are so many people leading the forefront of nutrition and health, and it's easy to find once you become connected! I have been gluten free, vegan for five months, and am feeling better than i have in a long time. I continue my journey and am treating with a doctor who focuses on neurologic and metabolic medicine. I will continue to post my journey here, as I unravel the puzzle and really understand what's going on in my body. I have a good idea, but there is still more to discover.

      Good luck!

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    12. I got tested for the poisoning and the results Came back today at .17. Anything let .05 is considered toxic. I'm starting a detox this week.

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    13. Hey I just stumbled upon your blog. I got sick back in 2005 when my thyroid shut done with symtoms of Hoshmotos throid. (Please note that my now ex-husband at the time works for the simi conductor industry and was having an affiar at the time I got sick. Now I wonder if he poisoned me to get everything in the divorce.) I also had a lot of your symtoms and was told I had Lyme Disease. The testing for Lyme is not very good so I had to use a speical lab, but even so sometimes I feel as if the symtoms are still there. I am wondering now if I should get tested for toxic levels of silicon. What test would you recomend and is there a way to test hair or something to see if I was poisoned in the past? This is very important and could seriouly free my children from being abused from my ex-husband who got costody after I got sick. Please help.

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    14. Omg! I feel sick to my stomach. I thought I was truly going insane. My life has been 'everything I have never been' for almost 5 years and in the last few months, my body feels like it is literally shutting down, one organ at time. I have every single symptom and more... I am 40yrs old with a 6yr old lil girl. It is just her & I, I have been so terrified of facing what is wrong...I feel like I'm dying & crazy. i have always been such a real& happy chilled person. I have asked myself& those who know my heart,where the hell have I gone? Everything feels tingly and numb, especially my hands, wrists legs ankles & feet. Hot hot flashes,my impeccable memory is all but gone, painfully photo/audio/ sensory sensitive.... extreme exhaustion, however don't have real sleep. Crippling Rumatoid arthritis. But the thing that breaks my heart is the brain fog, slow thinking and loss of wit & sense of humour. Sense of panic & dread, no joy. And the paranoia & fear that comes with knowing your behaviour is so out of character.
      I am all my baby has,I want to live & I want her to know her real mumma... not this terrified, anxious, deathly exhausted,short tempered,sickly weak, there is no joy, stranger!
      This is the very first time I have ever told anyone of this...
      Thank you♡

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      1. This is how I feel EXACTLY everyday since my mirena insertion.

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    15. I recently had the mirena inserted and I am having inflammation and severe joint pain to where I cannot pick up my 5 month old daughter.

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    16. How do y get your doctor to test for silicone poisoning? Has mirena for 5 plus years out for 1 year now still suffering w symptoms plus have many unresolved undiagnosed health issues too

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    17. How do y get your doctor to test for silicone poisoning? Has mirena for 5 plus years out for 1 year now still suffering w symptoms plus have many unresolved undiagnosed health issues too

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    18. So sorry for you...get it out. It gets better but the anger never goes away.

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    20. have had mine in almost a year, symptoms of numbness from head on down to my fingers started in August, now has escalated and more intense. OMG!!!! Will be seeing my Doc today!!!!

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    21. I've had my Mirena in for three years. In that time I've been diagnosed with rheumatoid arthritis and ankylosing spondylitis. There are days where I can barely move, the joint pain is so intense. The rheumatogist tried to put me on Humira, using the spondylitis as justification for the insurance to cover the cost. I asked, "are you doing this for insurance purposes, or because I truly have the illness?" He said "we'll see how you respond and know for sure ". I refused to inject myself with medication for an illness that the doctor wasn't even sure I had. Ive searched for the cause of this intense inflammation for years. There were times when I considered Black mold as the culprit. My diet is no sugar, and very low carbs, so it's not like the issue is diet related. I will have my Mirena removed on August 15. Before then, I'm going to ask my doctor to do the silicone labs. All I can hope for is some kind of relief. At 35 years old, I shouldn't be immobile. I have children to raise, and this is all around miserable for everyone.

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    22. It's 4 plus years since your post - how are you doing now? I have had all the same symptoms and issues. I can't believe they are still using the mirena - is there not a class action or a regulatory body to stop them poisoning women and destroying their lives? I live in Switzerland, the doctors seem to know the connection, they told me to remove the mirena but just then shrugged and said come back in 6 months if the symptoms aren't getting better! I've had to give up work and am really lucky that my husband has been supportive.

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